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Posted Wednesday, July 01, 2009 3:35 PM

Claudia Kalb: Another Resignation At Autism Speaks

Newsweek

by Claudia Kalb

It’s another resignation for Autism Speaks, the largest autism research and advocacy group in the country. In January, Alison Singer, then executive vice president of communications and awareness, quit the group, saying she could no longer support the organization’s investment in vaccine research. This week, Dr. Eric London, a member of Autism Speaks’s Scientific Affairs Committee, follows in her footsteps. In his letter of resignation, London said that Autism Speaks’s argument that “there might be rare cases of ‘biologically-plausible’ vaccine involvement…are misleading and disingenuous.” He goes on to charge the organization with “adversely impacting” autism research.

The longstanding vaccine-autism debate has focused largely on a subset of parents, who believe immunizations triggered their children’s autism, and scientists, whose studies show the shots are not to blame. Now the controversy is morphing into an organizational rivalry. In April, Singer formed a new research group, The Autism Science Foundation (ASF); its board of directors includes Dr. Paul Offit, whose book, Autism’s False Prophets (Columbia University Press, 2008) slams what he calls the “bad science” around claims of an autism-vaccine link. Singer says the Foundation, whose first major fundraising event is planned for May 2010, is focused on genetic research, treatments and support services; it will not devote any dollars to vaccine research. London’s wife is co-founder of the Autism Science Foundation, and London himself has been a member of its Scientific Advisory Board since it was launched. It was ASF that announced London’s resignation this week, posting his letter prominently on their website. Clearly, ASF wants to make its differences known and build its brand.

Autism Speaks, which has awarded millions of dollars in research grants, isn’t making a big deal of the news. In a statement to NEWSWEEK, the organization said: “Autism Speaks is currently pursuing a broad program of research, including studies on both genetic and environmental risk factors and the development of new treatments. We believe that our broad agenda will ultimately provide answers to the cause and treatment of autism spectrum disorders. We wish Dr. London well in his new endeavor.”

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Member Comments

Posted By: Montana450815 (July 5, 2009 at 8:43 PM)

I find the viterol towards those who are working toward understanding and hopefully treating/curing autism to be less than helpful. I recognize that there are different paths that organizations and individuals may take, but if any of them get to an answer than shouldn't you all be cheering them on rather then spewing hateful comments towards them? Shouldn't you be glad they are trying? It may not be the path you think is right, but if you really knew, the need for the research wouldn't be there.

As to the comment reference the danger to other siblings, isn't that a real possibility with some autistic children? I knew a young man who was extremely strong and displayed inappropriate behaviors toward others and was very difficult to get away from. I recall the family who was asked to leave their church because of their autistic son. Not only did the church find him disruptive but the younger and smaller children were afraid of him. For a church to go to court over this makes me believe they felt strongly about the subject.

While I have not had to personally deal with an autistic child, I have known many people who have and I know the heartache for your child is real, as is the lack of real understanding of the disease. I would just hope to see less hatefulness among the different beliefs as to the causes and cures. I would want all avenues explored if my child or grandchild were affected. I am disappointed that the people involved in Autism Speaks couldn't find a way to explore the different paths. I recall seeing the couple who started the organization on tv and had high hopes for the possibilies. I guess that was misplaced.


Posted By: Yael Lewis (July 5, 2009 at 1:11 PM)

I am a mother of a child with epilepsy-MAE to be specific and due to the lack of research funding for alternative methods to treat children w/ autism and epilepsy, many kids today are being overmedicated, thus I am currently in an underdeveloped country in which my son who was treated w/ five medications in a year time and was progressively becoming a special needs child due to the horrible consequence of the medication, is now being treated non-invasively and is returning to his old self.

These big grants for more medication I think is a waste, the research should be focused on how to identify the reason for autism, at an early age and to figure out alternative methods to treat children w/o drugging them and then suffering the consequences of the side effects at home. It is absolutely astounding that my family had to come to a third world country to recieve the treatment to help my son and to begin to return to a sense of normalcy.


Posted By: AutismClassroom.com (July 4, 2009 at 3:14 PM)

Wow.  I wonder what is going on there?  I hope they can continue to support and provide solid information and help to families.

-S. B. Linton, Owner, AutismClassroom.com

www.autismclassroom.com